Finding Data: Data on Health
ACCESS TO THESE DATA FILES ARE RESTRICTED TO CURRENTLY ENROLLED/EMPLOYED MEMBERS OF
- Selected Resources for: Health - Non USA
:: Mental health
:: Substance Abuse
- Adolescent Health and Academic Achievement (AHAA) Study
Provides an opportunity to examine the effects of education on adolescent behavior, academic achievement, and cognitive and psychosocial development in the 1990s. Expands the National Longitudinal Study of Adolescent Health (Add Health). While Add Health is a rich source of data on social contexts and adolescent development, it has limited information on the academic trajectories of youth. Thus, the AHAA study contributes to Add Health by providing the high school transcripts of Add Health Wave III sample members. The AHAA data provides indicators of (1) educational achievement, (2) course taking patterns, (3) curricular exposure, and (4) educational contexts within and between schools, all of which can be linked to the Add Health survey data. Access is restricted and through Sociometrics. To access
- Use the Social Science Electronic Data Library.
- Click on Data Archive on Adolescent Pregnancy and Pregnancy Prevention.
- Go to The National Longitudinal Study of Adolescent Health, Wave III, 2001-2002 (Add Health).
- Click on Download Instructions.
- Submit the request form.
- You will then have to wait to get permission to use.
- Aging, Status, and Sense of Control (ASOC), 1995, 1998, 2001
Examined the relationship between age & changes in the sense of control over one's life. Part 1 contains data for Waves I and II. Respondents were queried about their physical health, including activities of daily living such as shopping, walking, and doing housework, along with medical conditions such as heart disease, high blood pressure, lung disease, breast cancer, diabetes, arthritis or rheumatism, osteoporosis, and allergies or asthma. Questions regarding mental health investigated difficulties staying focused, feelings of sadness or anxiety, and enjoyment of life. Respondents were also asked about their health behaviors, including use of tobacco and alcohol, frequency of exercise, use of medical services including insurance coverage, and the number of prescription medications used. Also examined was respondents' sense of control over their lives, including social support and participation, and history of adversity, which covered such topics as home or apartment break-ins or assaults, major natural disasters, unemployment longer than 6 months, and times without enough money for clothes, food, rent, bills, or other necessities. Demographic questions included age, sex, marital status, education, work status, marital and family relations, and socioeconomic status. Wave III (Part 2) was collected in 2001 and contains data on the same questions such as physical health, mental health and health behaviors.
- AHRQ MCC Research Network Data (Agency for Healthcare Research and Quality)
Data and related materials to promote the study of people with multiple chronic conditions (MCC).
- AIDS Public Data Set
Contains counts of AIDS (Acquired Immune Deficiency Syndrome) cases reported to CDC by state and local health departments from 1981-2002. Case counts can be retrieved by demographics, case-definition, date of diagnosis, date of report, HIV exposure group (risk factors), and mortality.
- AIDS/STD Data Archive at Sociometrics
Consists of original research data and instruments from 11 premier studies on AIDS/HIV and other sexually transmitted diseases (STDs). Also available are 8 studies from the Archive of Behavioral and Social Research on HIV/AIDS, which provide descriptive and comparative data on the behavioral and social antecedents and consequences of HIV, AIDS, and sexually transmitted diseases. Part of Sociometrics.
- American Time Use Survey (2003+)
Collects information on how people living in the United States spend their time. Estimates show the kinds of activities people do and the time spent doing them by sex, age, educational attainment, labor force status, and other characteristics, as well as by weekday and weekend day. Also see the extract builder for quick cross tabulations (free registration is required). Also found on ICPSR. From 2006-2008, an Eating and Health Module included statistics on time spent in eating and drinking activities, grocery shopping, and meal preparation for the population age 15 and older and for participants in the Supplemental Nutrition Assistance Program, or SNAP (formerly the Food Stamp Program). Data are also presented on measures of the health status (such as Body Mass Index, or BMI) of the population by time spent in various activities. 2010, 2012, and 2013 included a Well-Being module which contains information related to how people felt during selected activities, as well as general health information. Also see the American Time Use Survey Data Extract Builder.
- Americans' Changing Lives: Waves I-IV (1986, 1989, 1994, 2002, and 2011)
Focusing especially on differences between black and white Americans in middle & late life, these data constitute the first 5 waves in a national longitudinal panel survey covering a wide range of sociological, psychological, mental, and physical health items. Among the topics covered are interpersonal relationships (spouse/partner, children, parents, friends), sources and levels of satisfaction, social interactions and leisure activities, traumatic life events (physical assault, serious illness, divorce, death of a loved one, financial or legal problems), perceptions of retirement, health behaviors (smoking, alcohol consumption, overweight, rest), and utilization of health care services (doctor visits, hospitalization, nursing home institutionalization, bed days). Also included are measures of physical health, psychological well-being, and indices referring to cognitive functioning. Background information provided for individuals includes household composition, number of children and grandchildren, employment status, occupation and work history, income, family financial situation, religious beliefs and practices, ethnicity, race, education, sex, and region of residence.
- Annenberg National Health Communication Survey (ANHCS) (2005+)
Designed to capture national trends relating health behavior and behavioral intentions to media exposure, health knowledge and beliefs, and policy preferences and beliefs. Only survey that is continuously in the field with a nationally representative sample, and it is presently one of few surveys emphasizing health communication and its possible outcomes. Data require free registration to download.
- Annual Survey of Hospitals
Survey of for-profit and not-for-profit hospitals on utilization and cost related matters is produced by the American Hospital Association. Documentation is available at (DSS)RA981.A2.A32. Data access: 1975-2013. Princeton also has the AHA Annual Survey IT Database for 2007-2014 (covers data for 2018-2014).
- Archive of Data on Disability to Enable Policy and Research (ADDEP)
Archive of quantitative and qualitative data on disability. Can be used to better understand and inform the implementation of the Americans with Disabilities Act and other disability policies with the goal of improving the lives and conditions of people with disabilities.
- Area Resource File (ARF) (1979, 1998-2000, 2005, 2008, 2012-2014)
Database containing more than 6,000 variables for each of the nation's counties. Contains information on health facilities, health professions, measures of resource scarcity, health status, economic activity, health training programs, and socioeconomic and environmental characteristics. Contains geographic codes and descriptors which enable it to be linked to many other files and to aggregate counties into various geographic groupings. ICPSR contains 1940-1990. Also know as Bureau of Health Professions Area Resource File.
- Assets and Opportunity Scorecard
Source for data on household financial security and policy solutions. Looks at financial assets and income; businesses and jobs; housing and homeownership; healthcare; and education.
- Association of State and Terrorism Health Officials (ASTHO)
Conducts a number of surveys including the "Profile Survey" (longitudinal series about state/territorial health agency responsibilities, structure, planning and quality improvement activities, workforce, and more that provides core data for ongoing public health systems research and a source for tracking state public health performance and best practices); "Health Reform Survey" (conducted to describe the degree and type of state health official involvement in health reform, identify the topics covered by current state health reform efforts, and develop ways in which ASTHO can best support its members in their health reform efforts); "Budget Cuts Survey", and "Minority Health Survey" (surveyed state and territorial health agencies on the ways that state and territorial health agencies address racial and ethnic minority health and health disparities). Researchers must apply directly to the agency for access.
- Behavioral Risk Factor Surveillance System (1984+) (BRFSS)
Tracks health risks in the United States. Monitors state-level prevalence of the major behavioral risks among adults associated with premature morbidity and mortality. Collects data on actual behaviors, rather than on attitudes or knowledge, that would be especially useful for planning, initiating, supporting, and evaluating health promotion and disease prevention programs.
- Border Contraceptive Access Study, El Paso, Texas 2005-2008
Oral contraceptive (OC) users living in El Paso, Texas were interviewed to assess motivations for patronizing a United States clinic or a Mexican pharmacy with over-the-counter (OTC) pills and to determine which women were likely to use the OTC option. The experiences of OC users who obtained their contraception from Mexican pharmacies were compared with those of women who obtained their pills from family planning clinics in El Paso, Texas, where eligible low-income women often pay nothing. 532 clinic users and 514 pharmacy users were surveyed about background characteristics, motivations for choosing their oral contraception source, and satisfaction with this source.
- California Consumers Experiences with Managed Care
Survey of insured Californian's experiences with managed health care done for California's Managed Health Care Improvement Task Force.
- California Work and Health Survey (1998-2000) (CWHS)
Telephone based, longitudinal survey of California adults designed by faculty and staff of the Work and Health Program at the University of California, San Francisco. Includes extensive coverage of employment status, recent job loss, working conditions and environment, and of physical and mental health status.
- Census of Medical Examiners' and Coroners' Offices (MECO) Series
Compilation of data on the practices of these offices, which are responsible for medical-legal death investigations. Covers information such as the prevalence of unidentified human remains on record in medical examiners' and coroners' offices across the country, record-keeping practices, and final disposition practices such as burial, cremation, or other means. In addition, data are included regarding FTE employees, contractors, and annual budgets.
- Center for Population Research in LGBT Health
Datasets useful for analysis of issues affecting sexual and gender minority populations in the United States.
- Chicago Community Adult Health Study, 2001-2003 (CCAHS)
Consists of 4 interrelated components that were conducted simultaneously: (1) a survey of adult health on a probability sample of 3,105 Chicago adults, including direct physical measurements of their blood pressure and heart rate and of height, weight, waist and hip circumference, and leg length; (2) a biomedical supplement which collected blood and/or saliva samples on a subset of 661 survey respondents; (3) a community survey in which individuals described aspects of the social environment of all survey respondents' neighborhoods; and (4) a systematic social observation (SSO) of the blocks in which potential survey respondents resided, including a lost letter drop as an unobtrusive measure of neighborhood social capital/sense of responsibility to help others. The latter two extend a community survey and SSO of neighborhoods carried out by the Project on Human Development in Chicago Neighborhoods in 1995. The adult health survey and the community survey were conducted jointly through face-to-face interviews with a stratified, multistage probability sample of 3,105 individuals aged 18 and over and living in the city of Chicago, with a response rate of 72 percent that is about the highest currently attainable in large urban areas. In addition, blood pressure, heart rate, and physical measurements (of height, weight, waist and hips, and leg length) were collected during the survey interview, and blood and saliva samples from 661 respondents or 60 percent of those doing the survey in the 80 "focal" neighborhood clusters (NC). SSOs were conducted on 1,663 of the 1,672 city blocks on which each respondent lived. Will advance the understanding of socioeconomic and racial/ethnic disparities in health. Data is restricted.
- Chicago Male Drug Use and Health Survey (MSM Supplement), 2002-2003
In recent years, club drugs such as MDMA, Ketamine, GHB, and Rohypnol have emerged as major drugs of abuse. The national and local Chicago news media have publicized law enforcement actions and adverse health outcomes, including fatalities, related to the abuse of these substances. Media accounts and a limited body of research have identified use of these substances as prevalent in the gay male community. This prevalence coincides with recent increases in HIV seropositive incidence. There is a clear need for a more comprehensive understanding of the prevalence of club drug use in the general population, and particularly in the subgroup of sexually active gay men. Noting these research gaps and their considerable adverse public health implications, this supplemental study was designed to apply an expanded protocol developed from an earlier study conducted (Feasibility and Use of Biological Measurement in Drug Surveys; R01DA12425, SRL Study #860) to a sample of gay men in Chicago. This study evaluated whether findings regarding the feasibility and use of drug testing in drug surveys derived from general population samples are generalizable to a probability sample of 216 gay men in the city of Chicago. For this project, a supplemental module was added to the main study survey that asked detailed questions about involvement in the gay community, risky sexual activity and HIV seropositivity. The scope of biological measurement was also expanded to incorporate testing for Rohypnol and Ketamine in hair (MDMA was already being tested as part of the general sample hair screen).
- Cognition and Aging in the USA (CogUSA) 2007-2009
National longitudinal study of cognition, focused on the age-related changes in cognition across cohorts and on the impact of cognition on key health and economic outcomes. The aim of the CogUSA Study was to evaluate the effectiveness of a variety of tests in assessing cognitive skills on a sample mirroring the Health and Retirement Survey. Data were derived in 3 waves, with each wave utilizing a variety of measures. In Waves 1 and 3, these measures included an adaptive number series test. The Woodcock-Johnson (WJ-III) number series test and the Wechsler Abbreviated Scale of Intelligence (WASI) were used in Wave 2. Waves 1 and 3 were conducted as telephone interviews, while Wave 2 was conducted as an in-person interview. This collection includes indicators of cognitive abilities and functioning as well as a variety of demographic, health, and economic variables. Dataset 1 presents participant demographic information, and Dataset 2 presents scores calculated for the cognitive tests administered to the respondents in each of the 3 waves.
- Community Tracking Study (CTS) (1997-2003); Health Tracking Household Survey (HTHS) (2007+)
Large-scale longitudinal investigation of health system change and its effects on people. The Health Tracking Household Survey is the successor to the CTS Household Surveys which were conducted in 1996-1997, 1998-1999, 2000-2001, and 2003. Also contains the Health Tracking Physician Survey. Although the HTHS questionnaires are similar to the CTS Household Survey questionnaires, the HTHS sampling design does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTHS design is a national sample not aimed at measuring change within communities. Hence, Community was dropped from the study title. Like the CTS Household Surveys, HTHS collected information on health insurance coverage, use of health services, health expenses, satisfaction with health care and physician choice, unmet health care needs, usual source of care and patient trust, health status, adult chronic conditions, height and weight, and smoking behavior. In addition, the survey inquired about perceptions of care delivery and quality, problems with paying medical bills, use of in-store retail and onsite workplace health clinics, patient engagement with health care, sources of health information, and shopping for health care. Domestic partners are included in the same (family insurance unit) FIU since many health insurance policies now cover them. Previously in the CTS Household Surveys, domestic partners (same-sex partners and other unmarried partners) formed separate FIUs.
- Complementary and Alternative Medicine Data Archive (CAMDA)
Part of Sociometrics. The datasets included are based on state-of-the-art research studies conducted in the U.S. and in foreign countries. Includes data from nationally representative surveys as well as from clinical trials.
- Comprehensive Epidemiologic Data Resource (CEDR)
Department of Energy's database of health studies of DOE contract workers and environmental studies of areas surrounding DOE facilities.
- Connecticut Health Care Survey, 2012-2013
Goal was to gather health-related experiences, information, and perspectives from Connecticut residents about themselves and children within their households. Provides state-level data on the health and health care of Connecticut residents, including health insurance coverage, access and sources of care, continuity of care, health status, and patient-provider experience and communication. Demographic variables include gender, age, race/ethnicity, and health reference group.
- Country trends in metabolic risk factors
Statistics by country for blood pressure, body mass index, cholesterol, diabetes, and glucose.
- Cross-National Comparison of Interagency Coordination Between Law Enforcement and Public Health
Examined strategies for interagency coordination in the United States, the United Kingdom, Canada, and Ireland. Primary goal was to produce promising practices that will help law enforcement and public health agencies improve interagency coordination related to terrorist threats, as well as other public health emergencies. Phase I of this study used the Surveillance System Inventory (SSI). The SSI is a database that documents and describes public health and public safety surveillance systems in the United States, the United Kingdom, Canada, and Ireland. The purpose of the SSI was to summarize the status of coordination between law enforcement and public health agencies across these systems, as well as to highlight potentially useful systems for coordination and dual-use integration.
- Cross-Site Evaluation of the Title XX Adolescent Family Life Program in 14 States, 2008-2011
Contains data collected from projects funded through Title XX, the Adolescent Family Life (AFL) program. A cross-site evaluation of the AFL program was conducted to describe the implementation of AFL projects and evaluate their impact on key outcomes. Baseline surveys were completed by 2,644 youths in 6 Prevention projects across 6 states and 1,037 adolescents in 12 Care projects across 10 states. A total of 13 states and the District of Columbia were included in the study. Prevention respondents completed a follow-up survey approximately 1 year after baseline. Care respondents who were pregnant at baseline completed follow-up surveys approximately 6 and 12 months after the birth of their child, and Care respondents who were parenting at baseline completed follow-up surveys approximately 1 year after baseline. The goal was to obtain information about demonstration projects to develop, test, and use curricula providing sex education to delay the onset of youth sexual activity and thus reduce the incidence of pregnancy and sexually transmitted diseases. The study sought to answer both process and outcome evaluation questions to determine whether the AFL program had desired effects on adolescents served. Topics covered include adolescent attitutes towards relationships and sexual behavior, birth control, and communication with parents and peers. Demographic variables also include gender, age, and education level.
- Data Archive of Social Research on Aging (DASRA)
Contains various large surveys for the USA: Longitudinal Study of Aging, 1984-1990; Longitudinal Retirement History Study, 1969-1979; Second Longitudinal Study of Aging (LSOA II): Baseline (Second Supplement on Aging (SOA II), 1994-1996) and Wave 2, Survivor and Decedent Files, 1994-1998, and Wave 3 Survivor and Decedent Files, 1999-2000; National Long-Term Care Survey: 1982, 1984, 1989; Hispanic Established Populations for the Epidemiologic Studies of the Elderly (Hispanic EPESE), Waves I-IV, 1993-2001; and National Survey of Self-Care and Aging (NSSCA), 1990-1994. Also contains select international studies: National Survey of the Japanese Elderly (NSJE): Wave 1-4, 1987-1996; Study on Global Aging and Adult Health (SAGE) (China, Ghana, India, Mexico, Russian Federation, and South Africa (2002-2004); and the Study on Global Aging and Adult Health (SAGE): Pilot Study, 2005. Part of Sociometrics.
- Data Resource Center for Child & Adolescent Health
Includes the National Survey of Children's Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN). The National Survey of Children's Health touches on multiple, intersecting aspects of children's lives including physical and mental health status, access to quality health care, as well as information on the child's family, neighborhood and social context. The National Survey of Children with Special Health Care Needs takes a close look at the health and functional status of children with special health care needs in the U.S., their physical, emotional and behavioral health, along with critical information on access to quality health care, care coordination of services, access to a medical home, transition services for youth, and the impact of chronic condition(s) on the child's family.
- Data-Planet Statistical Datasets
Provides easy access to a wide variety of economic, social, political, and marketing indicators.
- Employer Perspectives on the Health Insurance Market: A Survey of Businesses in the United States, 2014
Investigated health insurance benefits offered by private-sector employers as key components of the Affordable Care Act (ACA) were implemented. The employers were interviewed about the types of health benefits they offered to employees and dependents, reasons for offering health insurance, and key considerations when choosing health insurance plans with an emphasis on sources of information used to evaluate health insurance plan quality. Additional topics covered by the survey include the use of brokers to assist in choosing health insurance plans, changes in insurance carriers or decisions to offer additional plans with a new insurance carrier, and how employers planned to react to the ACA requirement that employers with 50 or more full-time employees offer coverage to at least 70 % of full-time employees or face financial penalties.
- Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey, 2001-2005
The Children's Futures initiative was designed to enhance the health and well-being of children from birth to age 3 in Trenton, New Jersey through 3 major strategies: (1) Improving access to prenatal care and strengthening effective parenting; (2) Improving the quality of child care; and (3) Strengthening and sustaining positive involvement of fathers in their children's lives. The data collection efforts included a baseline survey of the Trenton community conducted in 2002 and surveys of Trenton child care providers conducted in 2003, 2004, and 2005. In addition, births records for Trenton, Camden, and Newark were obtained from the New Jersey State Department of Health. The data from the 2002 community survey represents a baseline picture of the primary caregivers of children ages 0-5 in Trenton on a set of outcomes, among them parenting behaviors and strategies that the initiative hoped to influence. Like the baseline community survey, the follow-up surveys interviewed the primary caregivers of children aged 0-5 in Trenton households about child and parental health, parenting practices, fathers' involvement in their children's lives, health insurance and health care utilization, attendance at parenting groups or classes, and utilization of child care. In addition, the surveys collected information on country of birth, year of immigration, race, Hispanic origin, education, employment status, alcohol use, earnings, and household income. The community surveys followed a repeated cross-sectional design. That is, individual community residents were not followed over time; rather, at each wave of data collection, a new sample of respondents were interviewed. This followups are Evaluation of Children's Futures: Improving Health and Development Outcomes for Children in Trenton, New Jersey: Second Community Survey, 2008 and Third Community Survey, 2010
- Filipino American Community Epidemiological Study (FACES), 1995-1999
Research project of Asian American Recovery Services, Inc. of San Francisco, California. The 4-year study, whose formal title is Alcohol-Related Problems among Filipino Americans, provides information and data about the health of Filipino Americans of the San Francisco Bay Area and the City and County of Honolulu. The interview asked randomly chosen Filipino American respondents in these 2 geographic areas about their health, alcohol consumption, mood state, physical symptoms, cultural background and sociodemographic information. The purpose was to study alcohol and stress-related behaviors of Filipino Americans. Demographic variables include gender, age, race, education level, marital status, household income, military service, and religious preference.
- Finding Quality Doctors: How Americans Evaluate Provider Quality in the United States, 2014
Examined perceptions of health care provider quality in the United States. To that end, the survey respondents were asked what they thought was the most important factor that makes a high quality doctor or other health care provider and the most important factor that makes a poor quality one (hereafter "provider" denotes "doctor or other health care provider"). Additionally, respondents were asked about the importance of various provider attributes in their choice of a provider; whether there is a relationship between the quality and cost of health care; exposure to and trust in information about the quality of providers from various sources; and cost versus quality when choosing providers. Other topics covered by the survey include self-reported health, utilization of health care, quality of health care received and health insurance coverage. Background variables collected by the survey include age, sex, race, Hispanic ethnicity, marital status, education, employment status and political identification.
- Follow-up and Replication of Prevalence of Bulimia Among College Students, 1991-1992
These data were collected as a follow-up and replication of Colby, Ware, and Zuckerman's "Prevalence of Bulimia Among College Students" (1982-1984) study which surveyed a random sample of college students from Harvard University in 1982. The purpose of the replication was to examine changes in the prevalence of dieting behavior and eating disorder symptoms from 1982 to 1992. The follow-up was designed to assess whether any change in eating behaviors had occurred during the transition to early adulthood.
- Food Availability (Per Capita) Data System
Includes 3 distinct but related data series on food and nutrient availability for consumption.
- Fragile Families and Child Wellbeing Study
Follows a cohort of nearly 5,000 children born in large U.S. cities between 1998 and 2000 (roughly 3/4 of whom were born to unmarried parents). Refers to unmarried parents and their children as fragile families to underscore that they are families and that they are at greater risk of breaking up and living in poverty than more traditional families. Designed to primarily address 4 questions: (1) What are the conditions and capabilities of unmarried parents, especially fathers?; (2) What is the nature of the relationships between unmarried parents?; (3) How do children born into these families fare?; and (4) How do policies and environmental conditions affect families and children?
- Global Health Observatory (GHO)
Formerly WHO Statistical Information System (WHOSIS). Some useful datasets available here include:
- Burden of Disease Project
- Maternal Mortality
- Country Estimates of Health Personnel
- HAI and Antibiotic Use Prevalence Survey
The HAI (healthcare associated infections) and Antimicrobial Use Prevalence Survey will make improved estimates of the burden of HAIs in the United States. No microdata has been released but there are detailed reports available.
- Harlem Longitudinal Study of Urban Black Youth, 1968-1994
Involved the collection of a broad array of data concerning physical, psychological, and social aspects of health among a representative community sample of urban African-American adolescents. More specifically, the study aimed to determine the extent and direction of change in health status among African-American adolescents and youth; to identify the health problems most subject to change; to examine the initiation process and prevalence of drug use among African-American adolescents; to assess the impact of possible mediating variables such as family background characteristics, role attainment, social influences and psychosocial attitudes on drug use; and to examine the ways in which drug use affects the expected sequence of health, growth, and development.
- Health and Retirement Study. 1992+
Paints an emerging portrait of an aging America's physical and mental health, insurance coverage, financial status, family support systems, labor market status, and retirement planning. Registration is required. For an overview, see Chatterjee and Huston.
Sample Size: Over 22,000 Americans over the age of 50 every 2 years.
- Health Behavior in School-aged Children (HBSC) Series (1995-1998, 2001-2002, 2005-2006, 2009-2010)
Annual survey to solicit public opinion on social and political issues. Every year the survey will be conducted in approximately 50 countries, with a minimal sample size of 500 per country. Wherever possible, within each country a nationally representative sample n=500 adults, male and female, aged 18 and older will be used. In some emergent countries, where such research conditions are not possible, there may be stated variations to this (e.g. urban areas only). Similarly, in the developed world interviews will be conducted by telephone, while in emergent and under-developed countries face to face interviews will be conducted. Demographic variables include sex, age, household income, education level, employment status, and religious preference. ICPSR has data for the USA. Data for other countries are available by request through the Norwegian Social Science Data Archive. The survey involves 43 countries across North America and Europe.
- Health Information National Trends Survey (HINTS) Series
Collects nationally representative data about the American public's access to and use of cancer-related information. Highlights changing patterns, needs, and behavior in seeking and supplying cancer information and identify trends and practices in health communication in general.
- Health New Zealand Database on Tobacco Consumption and its determinants in 23 OECD Countries, 1960-2000
Provides information on consumption and warning labels for cigarettes and tobacco.
- Health Reform Monitoring Survey (1st quarter, 2013+)
In January 2013, the Urban Institute launched the Health Reform Monitoring Survey (HRMS), a quarterly survey of the nonelderly population, to explore the value of cutting-edge, Internet-based survey methods to monitor the Affordable Care Act (ACA) before data from federal government surveys are available. Topics covered include self-reported health status, type of and satisfaction with current health insurance coverage, access to and use of health care, health care affordability, use of information about the health insurance plans offered through the health insurance exchanges created by the ACA, enrollment in health plans or Medicaid through the ACA exchanges, the importance of various criteria in choosing health insurance plans, whether the respondent received notice that his/her current insurance policy was cancelled or would no longer be offered after 2013, worries about future health insurance coverage, and expectations about one's health insurance coverage in 2014. Additional information collected by the survey includes age, education, race, Hispanic origin, gender, income, household size, housing type, marital status, employment status, United States citizenship, smoking, internet access, home ownership, body mass index, sexual orientation, and whether the respondent reported an ambulatory care sensitive condition or a mental or behavioral condition.
- Health Tracking Physician Survey, 2008
The 2008 Health Tracking Physician Survey (HTPS) is the successor to the Community Tracking Study (CTS) Physician Surveys. Unlike the previous surveys, HTPS does not have the community focus intrinsic to CTS. Whereas the CTS design focused on 60 nationally representative communities with sample sizes large enough to draw conclusions about health system change in 12 communities, the HTPS design is a national sample not aimed at measuring change within communities. Hence, "Community" was dropped from the study title. Administered to a nationally representative sample of United States physicians providing direct patient care, HTPS collected information on physician characteristics and specialty distribution; career satisfaction; practice arrangements and ownership; financial interest in medical equipment and hospitals; and physician time allocation, including hours worked, number of office visits, time spent communicating with patients via e-mail and telephone, and provision of charity care. Also collected information about the racial and Hispanic-origin composition of patients; percent of patients with chronic conditions; percent of patients with a language barrier; use of interpreter services; sources of practice revenue; level and determinants of physician compensation; use of health information technology; physicians' perception of their ability to deliver care; effects of disease management programs and formal practice guidelines; extent of care coordination; malpractice concerns; and various other aspects of physicians' practice of medicine.
- Healthcare Cost and Utilization Project (HCUP)
Largest collection of longitudinal hospital care data in the United States, with all-payer, discharge-level information beginning in 1988. Micro-level HCUP data is also available from DSS. Speak to a librarian as a confidentiality agreement must be signed before this data can be made available. State of hospital and sometimes the city are identified. Princeton has the Nationwide Inpatient Sample (NIS) data for 1988-2012; the Nationwide Emergency Department Sample (NEDS) for 2006-2011; and State Inpatient Databases (SID) for Arizona (2002-2011), Maryland (2006-2011), New Jersey (2005-2011), Oregon (2002-2004), and Washington (2006-2011). Documentation for NIS: (DSS) RA981.A2 H38; Documentation for NEDS (DSS) RA875.5.E5 N374. Setup files can be found on the AHRQ site. Excellent overviews by topic can be found on the AHRQ site.
- Healthy Schools Program Evaluation, 2006-2011
Collected for the evaluation of the Healthy School Program (HSP), which provides support to elementary, middle, and high schools in the United States as they work to create healthy school environments that promote physical activity and healthy eating for students and staff.
- Hispanic Established Populations for the Epidemiologic Studies of the Elderly (1993-2007)
Consists of a baseline and 5 followups. The baseline Hispanic EPESE collected data on a representative sample of community-dwelling Mexican Americans, aged 65 years and older, residing in Arizona, California, Colorado, New Mexico, and Texas. The primary purpose of the series was to provide estimates of the prevalence of key physical health conditions, mental health conditions, and functional impairments in older Mexican Americans and to compare these estimates with those for other populations. Provides data on risk factors for mortality and morbidity in Mexican Americans in order to contrast how these factors operate differently in non-Hispanic White Americans, African Americans, and other major ethnic groups. The public-use data cover demographic characteristics (age, sex, type of Hispanic race, income, education, marital status, number of children, employment, and religion), height, weight, social and physical functioning, chronic conditions, related health problems, health habits, self-reported use of dental, hospital, and nursing home services, and depression. Subsequent follow-ups provide a cross-sectional examination of the predictors of mortality, changes in health outcomes, and institutionalization, and other changes in living arrangements, as well as changes in life situations and quality of life issues. During the 6th Wave, 2006-2007, reinterviews were conducted either in person or by proxy, with 921 of the original respondents. The 5th follow-up includes an additional sample of 621 Mexican Americans aged 75 years and over with higher average-levels of education than those of the surviving cohort, increasing the total number of respondents to 1,542. By diversifying the aged 75 years and older cohort, a better understanding can be gained of the influence of socioeconomic and cultural variations on the lives and health older Mexican Americans.
- HIV Costs and Services Utilization Study (HCSUS) (1996-1997)
First major research effort to collect information on a nationally representative sample of people in care for HIV infection. Provided information on the health care services persons with HIV disease received and on the costs of those services. Consists of 3 files: (1) Baseline 1996, (2) 1st Follow Up (1st 1/2 of 1997) and (3) 2nd Follow Up (2nd 1/2 of 1998)
- HIV Transmission Network Metastudy Project: An Archive of Data From Eight Network Studies, 1988--2001
The purpose of this project was to establish a collection of datasets that could be used (1) to analyze the influence of partnership networks on the transmission of sexually transmitted and blood-borne infections, and (2) to examine the influence of study design on estimation of network properties and impacts. Eight studies contributed datasets to the collection.
They include: (1) Colorado Springs Project 90, 1988-1992; (2) Bushwick [Brooklyn, NY] Social Factors and HIV Risk (SFHR) Study, 1991-1993; (3) Atlanta Urban Networks Project, 1996-1999; (4) Flagstaff Rural Network Study, 1996-1998; (5) Atlanta Antiretroviral Adherence Study, 1998-2001; (6) Houston Risk Networks Study, 1997-1998; (7) Baltimore SHIELD (Self-Help in Eliminating Life-Threatening Diseases), 1997-1999; and (8) Manitoba Chlamydia Study, 1997-1998. Each study contains information on sexual, needle sharing, and/or social networks. Each dataset was harmonized to permit comparative analysis. These studies, all closed for further enrollment, provide a range of designs and study types as well as a range of transmitted diseases. This allows researchers to investigate the relative effect of personal behavior and network connections on the dynamics of disease transmission, and to explore the impact of sampling design on estimation of network properties. Respondents were asked questions about different test results such as HIV, chlamydia, syphilis and hepatitis. Demographic variables include race, ethnicity, marital status, age, and gender.
- HIV/AIDS Surveillance Data Base
Compilation of information from widely scattered small-scale surveys on the AIDS pandemic and HIV seroprevalence (infection) in population groups in developing countries.
- Home Health Agencies and Hospice Facility Annual Utilization Data (California) (2001+)
Home Health Agencies (HHA) provide at home skilled nursing, personal care and therapeutic services. Hospices provide palliative care and alleviate the physical, emotional, social and spiritual discomforts of an individual who is experiencing the last phases of life due to the existence of a terminal disease. In addition, hospices provide supportive care for the primary care giver and the family of the hospice patient. Contains information on visits, services provided, and gross revenues.
- Hospital Annual Utilization Data (California) (2001+)
Contains basic licensing information including bed classifications; patient demographics including occupancy rates, the number of discharges and patient days by bed classification, and the number of live births; as well as information on the type of services provided including the number of surgical operating rooms, number of surgeries performed (both inpatient and outpatient), the number of cardiovascular procedures performed, and licensed emergency medical services provided.
- Hurricane Katrina Community Advisory Group Study
Aims to inform policy-makers of the impact of Hurricane Katrina on survivors' physical and mental health and barriers to treatment, as well as assist in future natural disaster planning efforts. This will be achieved by monitoring, over time, a group of people who represent those affected by Katrina. The Hurricane Katrina Community Advisory Group consists of a broad cross-section of people affected by Katrina, including separate samples of people who resided in the New Orleans metropolitan area at the time of the hurricane and those who resided in the counties or parishes of Alabama, Louisiana, and Mississippi that were in the path of the hurricane. Follow-up interviews conducted with the Advisory Group members to monitor the pace of recovery, as well as reports prepared for policy-makers, press releases, and digitally recorded oral histories are being posted on the Hurricane Katrina Community Advisory Group Web site as they become available. Demographic variables include gender, age, race, ethnicity, pre-hurricane residence (place), pre-hurricane type of housing (detached home, mobile home, apartment, etc.), pre-hurricane employment, family income, marital status, education, home ownership (owned with mortgage, owned without mortgage, rented, etc.), where the respondent lived at time of interview, religious preference, and religiosity.
- ICPSR Health and Medical Care Archive (HMCA)
Preserves and disseminates health care data collected by researchers. Subjects covered include Health Care Providers, Cost/Access to Health Care, Substance Abuse and Health, Chronic Health Conditions, and Other.
- ICPSR health datasets
Major and minor health datasets held at ICPSR.
- Integrated Health Interview Series (IHIS) (1962+)
Harmonized set of data and documentation based on material originally included in the public use files of the U.S. National Health Interview Survey (NHIS) and distributed for free over the Internet. IHIS variables are given consistent codes and have been thoroughly documented to facilitate cross-temporal comparisons.
- Joint Canada-US Survey of Health (JCUSH)
Research study conducted by Statistics Canada and the National Center for Health Statistics, U.S. Centers for Disease Control and Prevention. Data collection began in November 2002 and ended in March 2003. The JCUSH was a one-time, random telephone survey in both countries. Designed to produce a set of highly comparable health data on Canadian and U.S. populations that will enable researchers to better understand how the differing health care systems affect health care, health status and functional status.
Sample Size: Approximately 3,500 Canadian and 5,200 U.S. residents
Joint Canada-US Survey of Health (JCUSH) (Electronic File)
Principal investigator: Statistics Canada and the National Center for Health Statistics
Producer: Statistics Canada and the National Center for Health Statistics
Distributor: Statistics Canada
- Kaiser Family Foundation Polls
Questions and responses to health and healthcare surveys conducted by the Kaiser Family Foundation back to 1994.
- Longitudinal Studies of Aging
Multicohort study of persons 70 years of age and over designed primarily to measure changes in the health, functional status, living arrangements, and health services utilization of two cohorts of Americans as they move into and through the oldest ages.
- Longitudinal Study of Medical School Students, 1980-1984
Longitudinal study of the class of 1984 at Harvard and Tufts medical schools. Purpose was to identify and describe experiences of stress in the lives and training of medical students, to determine the nature of the personal and environmental resources that students used to cope with stress, and to assess the effectiveness of these adaptational responses.
- Massachusetts Health Reform Survey (2006-2010, 2012-2013)
Designed to track the impact of Massachusetts health care reform legislation passed in late 2006. Topics covered by the survey include health insurance status; specific types of health insurance coverage held by the survey respondents; insurance premiums and covered services for those with insurance; access to and use of health care; out-of-pocket health care costs and medical debt; health and disability status; and demographic and socioeconomic characteristics. Also gauged support for the legislation and awareness of its individual mandate. Some files are restricted.
- Medical Expenditure Panel Survey (MEPS)
Third (and most recent) in a series of national probability surveys conducted by the Agency for Healthcare Research and Quality (AHRQ) on the financing and utilization of medical care in the United States.
- Medicare current beneficiary survey : cost and use, 1994-2003
Link Medicare claims to survey-reported events and provides complete expenditure and source of payment data on all health care services, including those not covered by Medicare. Expenditure data were developed through a reconciliation process that combines information from survey respondents and Medicare administrative files. Files are highly restricted. To apply for use, go to the CMS page.
- Medicare Health Outcomes Survey (HOS), 1998-2007
First patient reported outcomes measure used in Medicare managed care. Continuous study that measures the physical and mental health of Medicare beneficiaries over a 2-year period. Starting in 1998, a baseline survey was administered to a new cohort of respondents each year in the spring and a follow-up survey was conducted of those same respondents 2 years later. Cohorts 1-5 include the Baseline Data, the Follow-Up Data, and the Analytic Data file, which contains the merged Baseline and Follow-Up files along with supplemental variables. Beginning with Cohort 6, the Follow-Up Data were included only in the Analytic file. Consists of the SF-36 Health Survey, which yields physical and mental health summary measures, as well as questions on topics such as chronic medical conditions, activities of daily living, depression, smoking, physical health symptoms, weight and height, and additional questions such as Urinary Incontinence in Older Adults, Osteoporosis Testing in Older Women, and Fall Risk Management. Also includes case mix adjustment variables which may be used to adjust the survey response data for beneficiary characteristics that are known to be related to systematic biases in the way people respond to survey questions. Demographic information includes respondent's age, sex, race, education level, marital status, and geographic region.
- Mexican Origin People in the United States: the 1979 Chicano Survey
Household survey of persons of Mexican descent living in California, Arizona, New Mexico, Colorado, Texas, and Chicago, Illinois. The purpose was to compile a statistically representative and comprehensive body of empirical information about the social, economic, and psychological status of Chicanos. Major topics covered were mental and physical health and use of health services, family background and composition, customary practices and values, language use and attitudes, employment history, social identity, group consciousness, and political opinions and participation.
Sample Size: Of over 11,000 people screened, 1,400 met the Mexican ancestry criterion. Of this total, 991 interviews were collected.
- Midlife Development in the United States (MIDUS) (1995+)
Established in 1989 to study a little known period in the lifespan -- middle age. Midlife, the years between 30 and 70, is perhaps the least studied and most ill-defined of any period of life. It abounds with changing images and myths, such as the "midlife crisis," the "change of life," the "empty nest syndrome," and many more. However, there has been little documentation about what really happens, biologically and psychologically, during this extended period of time. The primary objective is to identify the major biomedical, psychological, and social factors that permit some people to achieve good health, psychological well-being, and social responsiblity during their adult years. To do this, MIDMAC collected a series of data to establish an empirical basis for documenting what really happens in the middle years and to identify the factors that determine the course of midlife development. The first wave of data collection (MIDUS I) began in 1995 with a National Survey of Midlife Development in the United States. The main data collection consisted of a general population survey, as well as surveys of siblings of the general population respondents, and a twin pairs sample. The main data collection also included an oversample of five metropolitan areas. In addition to the main national survey, random subsamples of respondents were recruited to participate in in-depth investigations of selected topics, such as management strategies for coping with stressful experiences, a national study of daily experiences, and a study of psychological experiences. The MIDUS II project was designed to collect a second wave of data on the same respondents approximately 10 years later.
- Model-based Small Area Health Insurance Estimates (SAHIE) for Counties and States (2000+)
Estimates of health insurance coverage for states and all counties.
- Monitoring the Future. 1976+
Ongoing study of the behaviors, attitudes, and values of American secondary school students, college students, and young adults. Each year, a total of some 50,000 8th, 10th and 12th grade students are surveyed. A number of questions on drug use are asked.
Sample Size: 8th grade - approx. 18,000; 10th grade - approx. 17,000; 12th grade - approx. 16,000.
- Murray Research Archive - Health
Application may need to be made directly to the Murray Research Archive for permission to use the data.
- National Ambulatory Medical Care Survey series (NAMCS) 1973-1981, 1985, 1989+
Contains data on medical care provided in physicians' offices. It is a continuously sampled survey based on a nationwide sample of patient records.
- National Center for Health Statistics (NCHS)
The principle US Governmental health statistics agency, NCHS collects data from birth and death records, medical records, interview surveys, and through direct physical exams and laboratory testing.
Some useful NCHS datasets include:
- National Center for Veterans Analysis and Statistics
Includes "The National Survey of Veterans, Active Duty Service Members, Activated National Guard and Reserve Members, Family Members and Survivors", "Employment Histories Report", "Veterans Employability Research Survey", "National Survey of Veterans (NSV)", and various other reports and statistics on veterans.
- National Electronic Injury Surveillance System (NEISS) (1993+)
Data on nonfatal firearm-related injuries. Commonly called the "CDC Firearm Injury Surveillance Study". Provides the basis for national estimates of nonfatal firearm-related injuries and nonfatal BB/pellet gun-related injuries treated in hospital emergency departments in the United States. Beginning in July 2000, the National Center for Injury Prevention and Control, in collaboration with the Consumer Product Safety Commission, expanded NEISS to collect data on all types and causes of injuries treated in a representative sample of hospitals. This system is called the "NEISS All Injury Program (NEISS AIP)". These data provide the basis for national estimates of all types of nonfatal injuries treated in hospital emergency departments in the United States.
- National Evaluation of the Robert Wood Johnson Foundation's Urban Health Initiative (UHI): Survey of Adults and Youth (SAY), Waves 1-3, 1998-2005
This repeated cross-sectional national telephone survey of households was conducted as part of the evaluation of the Robert Wood Johnson Foundation's Urban Health Initiative (UHI), a long-term effort to improve the health, safety, and well-being of children and youth in five economically distressed cities in the United States: Baltimore, MD, Detroit, MI, Oakland, CA, Philadelphia, PA, and Richmond, VA. The UHI Survey of Adults and Youth (SAY) included a variety of questions, asked of both parents and their 10-18 year old children, regarding children's health, safety, perceptions of neighborhoods and schools, family relations, quality of city services, and other issues. SAY surveyed 3 types of households -- households without children, households with children aged 0-9 years, and households with children aged 10-18 years -- in up to 14 geographic areas, including the 5 UHI program cities, 9 comparison cities demographically similar to the UHI cities, the suburban regions of these cities, the most populous 100 United States cities, and the rest of the country.
- National Health and Nutrition Examination Survey (NHANES) and Followup Series (1971+)
The National Health and Nutrition Examination Surveys (NHANES I, II, III, Hispanic HANES, and NHANES I Epidemiologic Followup Survey [NHEFS]) were designed to obtain information on the health and nutritional status of the United States population. The NHANES I and NHANES II datasets were formerly titled Health and Nutrition Examination Surveys. This series succeeds the National Health Examination Survey, which was collected from 1959 to 1970. All of the NHANES datasets use complex, multistage, stratified, clustered samples of civilian noninstitutionalized populations. All of the files within each study are linkable to each other. NHANES I (1971-1975) interviewed persons aged 1-74 years. The sample was selected so that certain population groups thought to be at high risk of malnutrition (persons with low incomes, preschool children, women of childbearing age, and the elderly) were oversampled at preset rates. On completion of the survey, 23,808 of the interviewed sample were given a medical examination, and this information is also part of the NHANES I data collections. The NHANES I Epidemiologic Followup Study (NHEFS) is a longitudinal study designed to investigate the relationships between clinical, nutritional, and behavioral factors assessed in NHANES I and subsequent morbidity, mortality, and hospital utilization, as well as changes in risk factors, functional limitation, and institutionalization. The NHEFS cohort includes all persons aged 25-74 who completed a medical examination for NHANES I (N = 14,407). NHANES II (1976-1980), was designed to continue the measurement and monitoring of the nutritional status and health of the United States population. From the sample of 27,801 persons aged 6 months to 74 years, 25,286 people were interviewed and 20,322 were both interviewed and examined. Because children and persons classified as living at or below the poverty level were assumed to be at special risk of having nutritional problems, they were sampled at rates substantially higher than their proportions in the general population. NHANES III (1988-1994) contains information on a sample of 33,994 persons aged 2 months and older. A home examination was employed for the first time in order to obtain examination data for very young children and for the elderly. The Hispanic HANES (HHANES) was conducted to obtain sufficient numbers to produce estimates of the health and nutritional status of Hispanics in general, as well as specific data for Puerto Ricans, Mexican Americans, and Cuban Americans. The latest data can be found on the CDC website. Also see the New York City Health and Nutrition Examination Survey (NYC HANES), 2004.
- National Health and Social Life Survey (1992)
Extensive information on the sexual experiences and other social, demographic, attitudinal, and health-related characteristics of adults in the United States. Commonly called the NORC Sex Survey.
- National Health Interview Survey (1963+)
Formerly titled the Health Interview Surveys. Obtains information about the amount and distribution of illness, its effects in terms of disability and chronic impairments, and the kinds of health services people receive. Provides a continuous sampling and interviewing of the civilian, noninstitutionalized population of the United States. Supplemental data provide information on topics such as AIDS knowledge and attitudes, child health care and immunization, dental care, substance abuse, hospitalization, preventive care, nursing care, prosthetic appliances, and self-care. Supplements on Aging (SOA) conducted in 1984 and 1994 and the 1984-1990 Longitudinal Study of Aging (LSOA) were designed to furnish information on the causes and correlates of changes in the health and functioning of older Americans. Another component is the National Health Interview Survey on Disability (NHIS-D). Begun in 1994, the NHIS-D was designed to collect data that can be used to understand disability and to develop public policy on disability. Starting in 1997, the NHIS was redesigned to include a basic module, a periodic module, and a topical module. The basic module corresponds to the NHIS core questionnaire and is made up of the family core, the sample adult core, and the sample child core questions. The periodic module provides more detailed information on topics resulting from the basic module. The topical modules correspond to the supplements of the 1982-1996 NHIS and focus on public health data needs as they arise. 1987 and 1988 main surveys are not on ICPSR. They are on the NHIS site and newer data may also be present on the NHIS site. In addition, files for 1990-1994 that contain NHIS public-use data which has been enhanced to allow for the production of direct state estimates are on the DSS Server.
- National Home and Hospice Care Survey (NHHCS) (1996+)
Nationwide sample survey of home health and hospice care agencies, and their current and discharged patients. Specifically designed as an ongoing series to satisfy the diverse data needs of those who establish standards for, plan, provide, and assess long-term care services. Information is collected on agency characteristics, such as the number of patients served in the past 12 months, type of facility ownership, Medicare and Medicaid certification, number and type of staff personnel, and staff working hours. Information collected on current patients and discharged patients includes the service provided, provider type, residence, referral source, medical diagnosis, type of care, type of aids used, daily living activities, billing charges, and expected payment sources. Discharge diagnoses are also included for discharged patients. Demographic variables on sex, age, race, Hispanic origin, and marital status are included for both types of patients. ICPSR has data back to its origin in 1992. Replaced by the
National Study of Long-Term Care Providers.
- National Hospital Ambulatory Medical Care Survey Series (1992+)
Data on visits to hospital outpatient departments and emergency departments. Obtains data on demographics, triage, complaints, diagnosis, services, medications and immunizations provided, and waiting time. Segmented by patient's age, race, sex and geographic location of facility.)
- National Hospital Care Survey
Designed to provide accurate and reliable health care statistics that answer key questions of interest to health care and public health professionals, researchers and health care policy makers. This includes tracking the latest trends affecting hospitals and health care organizations and factors that influence the use of health care resources, the quality of health care and disparities in health care services provided to population subgroups in the United States. Integrates inpatient data formerly collected by the National Hospital Discharge Survey (NHDS) with the emergency department (ED), outpatient department (OPD), hospital-based ambulatory surgery location (ASL), and freestanding ambulatory surgery center (ASC) data collected by the National Hospital Ambulatory Medical Care Survey (NHAMCS).
- National Hospital Discharge Survey Series 1970-2010
In 1964, the National Center for Health Statistics initiated a continuous sample of hospital discharge records. In the surveys, which are made available in annual public use files, data are abstracted from medical records for a sample of patients discharged from a sample of nonfederal short-stay hospitals across the nation. Replaced by the National Hospital Care Survey.
- National Household Food Acquisition and Purchase Survey (FoodAPS)
1st nationally representative survey of American households to collect unique and comprehensive data about household food purchases and acquisitions. Detailed information was collected about foods purchased or otherwise acquired for consumption at home and away from home, including foods acquired through food and nutrition assistance programs. Includes nationally representative data from 4,826 households, including Supplemental Nutrition Assistance Program (SNAP) households, low-income households not participating in SNAP, and higher income households. FoodAPS provides information about household size and composition, available resources (including food and nutrition assistance program benefits, if any), and acquired food items (and their prices). Data is restricted and only acccessible through the NORC Data enclave.
- National Immunization Survey (NIS) (1995+)
Designed to assess progress on the Childhood Immunization Initiative (CII) established in 1992 and to track individual states' percentages of properly vaccinated children.
- National Long-Term Care Survey: 1982, 1984, 1989, 1994, 1999, and 2004
Nationally-representative sample both of the community and of institutionalized populations and is longitudinal in that sample persons join the survey once they reach 65 years of age and stay in the survey until they either die or are lost to follow-up. At each wave, a screener questionnaire is administered to the sample which divides the sample into three parts: the non-disabled (frequently called screen-outs), the disabled but living in the community, and the disabled living in an institution. About 5,000 people die between waves and are replaced by a sample of about that size of people who have become age 65 since the prior wave. Because of budget considerations it usually has not been possible to continue the entire non-disabled sample into the next wave. Instead a sample of the non-disabled is drawn to keep the total sample size for a wave at about 20,000. One of the interesting and useful features of the NLTCS is that data are collected on help that the sample person receives from informal caregivers.
- National Longitudinal Study of Adolescent Health, Waves I-IV, 1994-2008 (Add Health)
Collected data for the purpose of providing information on the general health and well-being of adolescents in the United States, including, with respect to such adolescents, information on: (1) the behaviors that promote health and the behaviors that are detrimental to health; and (2) the influence on health of factors particular to the communities in which adolescents reside. Wave IV consists of data from the most recent of 4 in-home interviews which have followed a nationally representative sample of adolescents since they were in grades 7-12 during the 1994-1995 school year. The Wave IV interviews were completed in 2008, when the sample was aged 24-32. The study combines longitudinal survey data on respondents' social, economic, psychological, and physical well-being with data on the family, neighborhood, community, school, friendships, peer groups, and romantic relationships.
Documentation can also be found on the AddHealth site.
- National Longitudinal Survey of Local Public Health Systems, 1998-2006
- National Longitudinal Survey of Youth 1979 and 1997
Designed to document the transition from school to work and into adulthood. Collects extensive information about youths' labor market behavior and educational experiences over time. Also included is a survey of the biological children of women in the NLSY79. Documentation is available at the NLS site. See the NLS Investigator guide. For comparisons of National Longitudinal Surveys, Survey of Income and Program Participation, and Panel Study of Income Dynamics, see the
comparison chart. Also see Finke and Huston. A separate file "Recidivism in the National Longitudinal Survey of Youth 1997 - Standalone Data (Rounds 1 to 13)" contains recidivism data.
Sample Size: The 1979 survey began with over 12,000 participants, while the 1997 survey began with approx. 9,000.
National Longitudinal Survey of Youth 1979 and 1997 (Electronic File)
Principal investigator: Ohio State University. Center for Human Resource Research.
Producer: Ohio State University, Center for Human Resource Research and U.S. Dept. of Labor, Bureau of Labor Statistics.
Distributor: Ohio State University. Center for Human Resource Research.
- National Maternal and Infant Health Survey, 1988 (NMIHS)
Designed to explore factors that cause negative pregnancy outcomes. Questions were asked of pregnant women concerning prenatal care, weight gain or loss during pregnancy, alcohol, cigarette, or drug use during pregnancy, and whether vitamin or mineral supplements were taken before or during pregnancy. In addition, questions were asked about the use of home pregnancy tests, exercise before and during pregnancy, medical care before, during, and after delivery, previous pregnancies and their outcomes, birth control use, and how the mother felt and behaved. Demographic information about the mother such as marital status, marital history, date of birth, state of birth, mother's weight at birth, weight changes before, during, and after pregnancy, height, race, education, work history, and place of residence was obtained. Information about the father includes items such as age, height, weight, education, and job status. In addition, family income questions were asked, as were questions about the health, care, and feeding of the baby. Information was also taken from birth certificates and fetal and infant death certificates. Also see the Longitudinal Follow-up, 1991. This follow-up consists of 3 components that provide information on early childhood morbidity and health. The Live Birth Survey (Part 1) obtained data on national health issues affecting children, such as child development, effects of low birth weight, childhood injury, child care, pediatric care, health insurance coverage, child safety, and acute and chronic childhood illnesses. For the Medical Provider Survey (Part 12), respondents to the Live Birth Survey were asked to provide the names of all medical providers and hospitals where their children were diagnosed, treated, and/or admitted. Each health care provider was asked to supply information on its organization, the child's health status and history, and each visit or hospitalization. The Fetal and Infant Death Survey (Part 21) interviewed women who were identified through the 1988 NMIHS as having lost a fetus or an infant during the study period. These respondents were reinterviewed to gather information about their health and about any pregnancies since their loss in 1988.
- National Medical Expenditure Survey (1977+)
Information on health expenditures by or on behalf of families and individuals, the financing of these expenditures, and each person's use of services.
- National Mortality Followback Survey (1966-1968, 1986, 1993)
Uses a sample of United States residents who die in a given year, supplementing information derived from the death certificate with information from the next of kin or another person familiar with the decedent's life history. This information, sometimes enhanced by administrative records, is collected in order to study the etiology of disease, demographic trends in mortality, and other health issues.
- National Nursing Home Survey (1973-1974, 1977, 1985, 1995, 1997, 1999, 2004)
Continuing series of nationally representative sample surveys of United States nursing homes, their services, their staff, and their residents. This survey was preceded by a series of surveys from 1963 through 1969, called the Residents Places Surveys. Replaced by the
National Study of Long-Term Care Providers.
- National Sample Survey of Registered Nurses
Conducted approximately every 4 years since 1977.
- National Social Life, Health, and Aging Project (NSHAP)
First population-based study of health and social factors on a national scale, aiming to understand the well-being of older, community-dwelling Americans by examining the interactions among physical health, illness, medication use, cognitive function, emotional health, sensory function, health behaviors, and social connectedness. National Social Life, Health, and Aging Project (NSHAP): Wave 2 and Partner Data Collection is a separate file.
- National Study of Long-Term Care Providers (NSLTCP)
Biennial. Initiative to monitor trends in the major sectors of paid, regulated long-term care services providers. NSLTCP uses data from surveys of residential care communities and adult day services centers and administrative data on home health agencies, nursing homes and hospices. Replaces the previous National Nursing Home Survey, National Home and Hospice Care Survey, and National Survey of Residential Care Facilities.
- National Study of Physician Organizations and the Management of Chronic Illness II (NSPO2), 2006-2007
Examined the extent to which the investments in quality improvement were translated into action. NSPO2 assessed the status of CMPs and preventive services use as well as their key drivers in 2006-2007 and the extent to which these factors have changed over time. As in the 1st NSPO survey, NSPO2 focused on the treatment of 4 chronic diseases: asthma, congestive heart failure (CHF), depression, and diabetes. Topics covered by the survey include practice type, size, age, ownership, and number of locations; clinical information systems; care management and clinical practice; activities of health insurance plans in chronic illness care; performance incentives; preventative care and health promotion; and organizational culture. This collection has 2 data files. The 1st file contains the NSPO2 survey data, while the 2nd contains a crosswalk between the NSPO1 and NSPO2 case identification numbers which can be used to link the data of the Pos that responded to both surveys. Altogether, 369 of the 1,104 Pos that responded to NSPO1 also responded to NSPO2.
- National Survey of America's Families
Provides a comprehensive look at the well-being of children and non-elderly adults, and reveals sometimes striking differences among the 13 states studied in depth. Provides quantitative measures of child, adult and family well-being in America, with an emphasis on persons in low-income families. Representative of the noninstitutionalized, civilian population of persons under age 65 in the nation as a whole and in 13 states: Alabama, California, Colorado, Florida, Massachusetts, Michigan, Minnesota, Mississippi, New Jersey, New York, Texas, Washington, and Wisconsin. Together, these states are home to more than half the nation's population and represent a broad range of state characteristics in terms of fiscal capacity, child well-being indicators, and approaches to government programs.
Three rounds of the survey have been carried out. The first round of data collection was completed in 1997, the second in 1999, and the third in 2002.
Sample Size: Over 40,000 families, yielding more than 100,000 observations, per round.
- National Survey of Children's Health Series (2003+)
National survey that provides a broad range of information about children's health and well-being collected in a manner that allows for comparisons between states and at the national level. Telephone numbers are called at random to identify households with one or more children under 18 years of age. In each household, one child was randomly selected to be the subject of the interview. The survey results are weighted to represent the population of non-institutionalized children aged 0-17 nationally, and in each state. Also see their own site for more information and possibly for up to date data. Collection of data for the National Survey of Children's Health is designed to alternate with collection for the National Survey of Children with Special Health Care Needs so that new data are available every 2 years, 4 years for a particular survey.
- National Survey of Family Growth (1973+)
Women were asked questions about fertility and contraception, including contraceptive use and pregnancy histories, desired family size, and expectation of further children. Also reports background information about the respondent and her husband, such as education, religion, ethnic origin, occupation, and earnings. For the final round see the CDC pages.
- National Survey of Residential Care Facilities (NSRCF)
First ever survey of residential care providers. Included are residential care facilities; assisted living residences; board and care homes; congregate care; enriched housing programs; homes for the aged; personal care homes; and shared housing establishments that are licensed, registered, listed, certified, or otherwise regulated by a state. Designed to produce national estimates of these places and their residents. Replaced by the
National Study of Long-Term Care Providers.
- National Survey on Drug Use and Health (NSDUH) Series (1979+)
Formerly titled National Household Survey on Drug Abuse. Strives to provide accurate data on the level and patterns of licit and illicit drug use, track trends in the use of alcohol and various types of drugs, assess the consequences of drug use and abuse, and identify groups with a high risk for drug abuse to assess and monitor the nature of drug and alcohol use and the consequences of abuse. Primarily measures drug and alcohol use incidence and prevalence among the general civilian population aged 12 and older in the United States. Questions include age at first use, as well as lifetime, annual, and past-month usage for the following drugs: alcohol, marijuana, cocaine (including crack), hallucinogens, heroin, inhalants, tobacco, pain relievers, tranquilizers, stimulants, and sedatives. Covers substance abuse treatment history and perceived need for treatment, and includes questions from the Diagnostic and Statistical Manual (DSM) of Mental Disorders that allow diagnostic criteria to be applied. Respondents were also asked about personal and family income sources and amounts, health care access and coverage, illegal activities and arrest record, problems resulting from the use of drugs, perceptions of risks, and needle-sharing. Demographic data include gender, race, age, ethnicity, educational level, job status, income level, veteran status, household composition, and population density. Using R-DAS one can get crosstabs from the restricted data including the state identifier.
- National Vietnam Veterans' Readjustment Study (NVVRS)
Contains data from an assessment of the etiology, evolution, and extent of readjustment problems experienced by veterans of the Vietnam War. Variables include age, service period, duty status, casualties suffered, education, health conditions and disability status, hospitalization, use of Veterans Administration medical facilities and programs, medical history, insurance coverage, employment and training, income and investments, and assets and debts. Obtained from the National Archives.
- National Youth Smoking Cessation Survey, 2003-2005
This 2-year longitudinal telephone survey interviewed tobacco smokers aged 16 to 24 years at baseline about their smoking cessation activity and related topics. Specific aims were: (1) To establish national baseline estimates for various indicators of smoking cessation activity among this age group for comparison with future surveys on the same topic; (2) To describe their natural history of quitting in a nationally representative sample; and (3) To develop statistical models predicting: making a quit attempt, maintaining abstinence, and selecting various quitting strategies. Respondents were interviewed at baseline, six-month follow-up, twelve-month follow-up, and 24-month follow-up. Topics covered by the questionnaires include smoking and use of other tobacco products; attitudes towards smoking and nicotine replacement therapy; patterns of quitting and discontinuance; methods of quitting and reasons for not quitting; lifestyle (alcohol use, physical activity level, weight loss, risk orientation, school performance, movie viewing); psychosocial issues (perceived stress, depressive symptoms, Attention-Deficit Disorder/Attention-Deficit Hyperactive Disorder); smoking environment including parents'/guardians' smoking behaviors, quit attempts, and attitudes about the respondent's smoking; and tobacco marketing (use of or interest in promotional items and awareness of advertisements). Demographic information collected by the survey includes age, sex, race, Hispanic origin, educational attainment, school enrollment, employment, income, and language spoken at home.
- New Beneficiary Data System (NBDS)
Contains extensive information on the changing circumstances of aged and disabled beneficiaries. Based initially on a national cross-sectional survey of new beneficiaries in 1982, the original data base has been expanded with information from administrative records and a second round of interviews in 1991. Variables measured in the original New Beneficiary Survey (NBS) include demographic characteristics; employment, marital, and childbearing histories; household composition; health; income and assets; program knowledge; and information about the spouses of married respondents. The 1991 New Beneficiary Follow-up (NBF) updates marital status, household composition, and the economic profile and contains additional sections on family contacts, postretirement employment, effects of widowhood and divorce, major reasons for changes in economic status, a more extensive section on health, and information on household moves and reasons for moving. Disabled-worker beneficiaries were also asked about their efforts to return to work, experiences with rehabilitation services, and knowledge of SSA work incentive provisions. The NBDS contains unique measurements that make it valuable not only for studies about Social Security but also for studies of health, economic, labor, gerontological, and welfare issues. It contains objective measures from administrative files of yearly covered earnings from 1951 to 1992, Medicare expenditures from 1984 to 1999, whether an SSI application has ever been made and payment status at 5 points in time, and dates of death as of spring 2001. For studies of health, the Medicare expenditure variables include inpatient hospital costs, outpatient hospital costs, home health care costs, and physicians' charges. The survey data cover functional capacity including ADLs and IADLs. For studies of work in retirement, the survey includes yearly information on extent of work, characteristics of the current or last job, and reasons for working or not working. No other data set has such detailed baseline survey data of a population immediately after their retirement or disability enhanced with subsequent measures over an extended period of time.
- New Jersey Childhood Obesity Study, 2009-2010
Designed to provide vital information for planning, implementing, and evaluating interventions aimed at preventing childhood obesity in five New Jersey municipalities: Camden, Newark, New Brunswick, Trenton, and Vineland. Conducted among households with 3-18 year old children in the 5 cities, the survey interviewed the adult who made most of the decisions about food shopping in each household. Examined perceptions about food and physical activity environments in the five cities, investigated barriers related to access to healthy food and physical activity facilities, and collected information on the height and weight and food and physical activity behaviors of the cities' 3-18 year old children and the adult respondents. In addition, the survey collected demographic information about the household members.
- New York City Community Health Survey Series (CHS) (2002+)
Telephone survey conducted annually by the New York City Department of Health & Mental Hygiene (DOHMH). Provides robust data on the health of New Yorkers, including neighborhood, borough, and citywide estimates on a broad range of chronic diseases and behavioral risk factors. Based upon the United States national Behavioral Risk Factor Surveillance System (BRFSS), the CHS is a cross-sectional survey that samples approximately 10,000 adults aged 18 & older from all 5 boroughs of New York City. All data collected are self-reported. Data are available on 33 different neighborhoods, defined by ZIP code.
- OECD Health Data
Examines national health systems from 1960 forward for OECD member countries in a general, demographic, economic, and social context.
- Oregon Health Insurance Experiment, 2008-2010
In 2008, a group of uninsured low-income adults in Oregon was selected by lottery to be given the chance to apply for Medicaid. This lottery provides an opportunity to gauge the effects of expanding access to public health insurance on the health care use, financial strain, and health of low-income adults using a randomized controlled design. The Oregon Health Insurance Experiment follows and compares those selected in the lottery (treatment group) with those not selected (control group). The data collected and provided here include data from three surveys and administrative records on Medicaid enrollment, the initial lottery sign-up list, welfare benefits, and mortality.
- Panel Study of Income Dynamics (PSID) Series. 1968+
Designed to fill the need for a better understanding of the determinants of family income and its changes. Longitudinal survey of US individuals and the families in which they reside. Can be used for cross-sectional, longitudinal, and intergenerational analysis and for studying both individuals and families. For comparisons of Current Population Survey, Survey of Income and Program Participation, and PSID, see the
comparison chart. For comparisons of National Longitudinal Surveys, Survey of Income and Program Participation, and PSID, see the
comparison chart. Includes section on education, food, health, housing, psychological state, and religion. Includes various supplemental surveys including: (1) Disability and Use of Time (DUST): collected information from older adults in PSID families about disability, time use, and well-being during telephone interviews conducted shortly after the 2009 and 2013 Main Interviews.; (2) Child Development Supplement (CDS): In 1997 information on PSID children ages 0-12 was obtained through extensive interviews with the child, their primary caregiver, secondary caregiver, absent parent, teacher, and school administrator. Information was collected again in 2002/2003 and 2007/2008 for children in this cohort who remained under 18. Information includes a broad array of developmental outcomes including physical health, emotional well-being, intellectual and academic achievement, cognitive ability, social relationships with family and peers, time diaries, and much more and 3) Housing, Mortgage Stress, and Wealth Data (2009, 2001, 2013) as well as Wealth files for 1984, 1989, 1994, 1999, 2001, 2003, 2005 and 2007. (3) Transition into Adulthood: When children in the CDS cohort are older than 18 and have left high school, information is obtained about their circumstances. This study has been implemented in 2005, and biennially thereafter. Information includes measures of time use, psychological functioning, marriage, family, responsibilities, employment and income, education and career goals, health, social environment, religiosity, and outlook on life. Geography is down to the state level.
- Population Research Center at NORC and The University of Chicago
Makes available data from some of the Population Research Center's projects. Interesting datasets include the National Health and Social Life Survey, the Chicago Health and Social Life Survey, the Chinese Health and Family Life Survey, and the Taiwan Women and Family Studies. Profiles sexual behavior, demography and health.
- Primary Care and Specialty Clinics Annual Utilization Data (California) (2001+)
The clinic annual utilization data includes 2 types of clinics: primary care clinics and specialty clinics. Primary care clinics, which include community and free clinics, offer a full range of primary care services to the uninsured and underinsured in their communities. Specialty clinics include freestanding surgical, chronic dialysis, and rehabilitation clinics as well as alternative birth centers. The complete database of annual utilization data reported by primary care clinics contains basic clinic identification information including community services, clinic staffing data, and patient and staff language data; financial information including gross revenue, itemized write-offs by program, an income statement, and selected capital project items; and information on encounters by service, principal diagnosis, and procedure codes (CPT codes). The complete database of annual utilization data reported by specialty clinics contains basic information including the number of surgical operating rooms, number of surgeries performed, number of patients, number of encounters by service type, and major capital expenditures.
- Primary Care Service Areas
Nationwide data United States primary health care resources, populations and utilization, compiled and presented in newly developed units of analysis (Primary Care Service Areas) and related to other geopolitical regions.
- Princeton Affect and Time Survey (May-August 2006)
- Public Patient Discharge Data [California]
Captures information for each inpatient discharged from a California hospital. Annual data holdings begin in 1983. Latest data is 2013. Documentation is available at (DSS)RA981.C3.C35 and RA981.C3 P824 . Recent documentation is also available online. DSS Study #2947 is restricted and stored on a secure server. Access will be granted after authorization. Please sign the form and give to the Data Librarian. Former title is California Patient Discharge Data. Summary data for 1999+ is available through their web site. Data is down to the zip code and hospital level. Princeton also has Ambulatory Surgery Data 2010-2013 and Emergency Department Data 2010-2013.
- Puerto Rican Elderly: Health Conditions (PREHCO) Project, 2002-2003, 2006-2007
Investigates the mental and physical health status among the elderly (individuals over 60 years of age) in Puerto Rico. Through a cross-sectional sample survey of target individuals and their spouses, PREHCO identifies the varying demographic and health variables affecting the elderly such as income, housing arrangements, health insurance, migration, and childhood characteristics. Based on the patterns of access and utilization of health services, the data can be used to project the health profiles and risks of mortality among the elderly in Puerto Rico.
- Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995
Cross-sectional study designed to provide information on the determinants of poor infant health among Puerto Ricans. Features personal interview data from 2,763 mothers of Puerto Rican infants sampled from the 1994 and 1995 birth and infant death records of 6 United States vital statistics reporting areas (Connecticut, Florida, Massachusetts, New Jersey, New York City, Pennsylvania) and the Commonwealth of Puerto Rico. Mothers were contacted to participate in a Computer Assisted Personal Interview (CAPI) using the address information provided in the birth and infant death records. Respondent mothers were asked to recount their sexual history and use of contraception, age at conception, prenatal care and nutrition, substance abuse, and overall health before and during pregnancy. Details were also collected regarding migration history, family composition, partner involvement, social support structures, and receipt of any public financial assistance for food, housing, and/or medical care. Information regarding infant health and well-being was also gathered, and included respondents' reporting of recurrent health issues, required medical treatments, immunizations, and any accidents or sustained injuries. Mothers were also asked to confirm attainment of a number of infant developmental milestones, including sitting, crawling, standing, waving, and vocalization, as well as several other behaviors and abilities. Demographic information for mothers includes age, education, occupation, income, marital status, race and ethnic identity, language, and religious preference.
- RAND Center for Population Health and Health Disparities Data Core Series (CPHHD)
Dynamic collection composed of a wide selection of analytical measures, encompassing a variety of domains, all derived from a number of disparate data sources. There are currently 7 studies derived for a variety of substantive areas including: Cost-of-Living, Disability, Pollution, Segregation Indices, Street Connectivity, an Index of Neighborhood Socioeconomic Status, and an Abridged Decennial Census. The central focus is on geographic measures for census tracts, counties, and Metropolitan Statistical Areas (MSAs) from two distinct geo-reference points, 1990 and 2000. The number and comprehensiveness of the measures derived within each data set vary according to the expansiveness of the substantive area. Generally speaking, the time periods for which these data are available is the 1990-2000 time period, though data are available for years before and after this time frame, depending upon the data set.
- RAND Health Insurance Experiment [in Metropolitan and Non-Metropolitan Areas of the United States], 1974-1982 (HIE)
Conducted from 1974 to 1982 in 6 sites: Dayton, Ohio; Seattle, Washington; Fitchburg-Leominster and Franklin County, Massachusetts; and Charleston and Georgetown County, South Carolina. These sites represent four census regions (Midwest, West, Northeast, and South), as well as urban and rural areas. Attempted to determine what effects alternative cost-sharing plans and a staff-model Health Maintenance Organization (HMO) had on the use of medical services and individual health outcomes. The main purpose was to assess how the cost of health services affected individuals' use of services, their satisfaction with health care, the quality of their care, and the state of their health. To study the effects of health insurance coverage, a comprehensive method for measuring health and monitoring changes in health over time was developed. Health status was seen as having 4 dimensions: physical, mental, social, and physiological. Physical health focused on 5 categories of activities: self-care, mobility, exertion, role fulfillment, and leisure pursuits. Mental health focused on mood and anxiety disorders along with loss of control over feelings, thoughts, and behavior. Social health was assessed by the frequency of several kinds of participation, interaction, and resources, covering family and home, social life, and community involvement. Physiologic health was determined by looking at a number of physical disorders both in adults (aged 14 to 61) and children (aged 0 to 13) that would be easily traced over time and would be responsive to changes in the level and quality of medical care. For adults, acne, congestive heart failure, and sleeping pill and tranquilizer use were considered. For children, variables included allergic conditions (asthma, eczema, hay fever), anemia, middle ear disease, hearing impairment, and vision impairment. Also included were general health measures based on single questions about health-related pain and worry, and a rating of health (excellent, good, fair, poor). Health habits described aspects of smoking, consumption of alcohol, weight, height, and exercise.
- Randomized Controlled Trial of Breakfast Recommendations on Weight: A Multi-Site Effectiveness Trial
- Research Archive on Disability in the U.S. (RADIUS)
Facilitates access to data sets on the prevalence, incidence, correlates, and consequences of disability in the U.S. Part of Sociometrics.
- Research on Early Life and Aging Trends and Effects (RELATE): A Cross-National Study
Compiles cross-national data that contain information that can be used to examine the effects of early life conditions on older adult health conditions, including heart disease, diabetes, obesity, functionality, mortality, and self-reported health. The complete cross sectional/longitudinal dataset (n=147,278) was compiled from major studies of older adults or households across the world that in most instances are representative of the older adult population either nationally, in major urban centers, or in provinces. It includes over 180 variables with information on demographic and geographic variables along with information about early life conditions and life course events for older adults in low, middle and high income countries. Selected variables were harmonized to facilitate cross national comparisons.
- Retirement History Longitudinal Survey (1969-1979)
10 year longitudinal study that investigated the changes in the economic and social characteristics of men and unmarried women in the United States, aged 58-63, as they approached and entered the retirement phase of their lives. The main purpose of the study was to assess the Social Security Program's provisions for retired workers, not only for recording the socioeconomic situation of Social Security beneficiaries, but also to aid policymakers in planning program changes. Covers (1) labor force history, (2) retirement and retirement plans, (3) health, (4) household, family, and social activities, and (5) income, assets, and debts.
- Sacramento Area Latino Study on Aging (SALSA Study), 1996-2008
Tracked the incidence of physical and cognitive impairment as well as dementia and cardiovascular diseases in elderly Latinos in the Sacramento, California, region. Aimed to assess cognitive, physical and social functions, which include the ability to follow instructions, to perform certain movements, and to interact with others. Explored the effects that cultural, nutritional, social and cardiovascular risk factors have on overall health and dementia, and examined the association between diabetes and functional status. Demographic information includes age given at follow-up visits, country of birth, language, religion, marital status, educational level, occupation, household income, and size of household. Includes neuroclinical exam data, neurophysical exam data, and semi-annual phone call data.
- Sexual Acquisition and Transmission of HIV Cooperative Agreement Program (SATHCAP), 2006-2008 [United States] Restricted Use Files
Multisite study designed to assess the role of drug use in the sexual transmission of the human immunodeficiency virus (HIV) from traditional high-risk groups, such as men who have sex with men (MSM) and drug users (DU), to lower risk groups, such as non-drug-using sexual partners. Conducted in Los Angeles, CA; Chicago, IL; and Raleigh Durham, NC; and in St. Petersburg, Russia. Only the USA data is available (data is restricted).
- Simmons Longitudinal Study: Adaptation and Development Across the Lifespan (1977-1998)
Community-based study that prospectively traced the life course of a single-aged cohort from childhood to adulthood. Data were collected from multiple informants at seven major time points: age 5 (1977), age 6 (1978), age 9 (1980-1981), age 15 (1987), age 18 (1990), age 21 (1993-1994), and age 26 (1998). Traced the development and course of academic difficulties, behavior problems, and psychopathology; and identified factors that promoted health functioning from early childhood (age 5) to adulthood (age 26). The original study group was comprised of every child who entered kindergarten in the fall of 1977 in one public school district in a northeastern town in the United States. For Wave 7, respondents were 26 years old in 1998. In addition to diagnostic information, participants reported on their current employment, functioning, and family relationships.
- State Health Policy Research Dataset (SHEPRD): 1980-2010
Developed to study trends in the adoption of state public health laws. Specifically, the dataset covers annual trends in seatbelt laws, speed limits for passenger vehicles on rural interstates, minimum legal drinking ages, drunk driving laws, laws prohibiting the purchase of alcohol on Sundays, regulations for registering purchased kegs and/or prohibitions against selling kegs, beer taxes and total alcohol tax revenues, motorcycle and bicycle helmet laws, cigarette taxes, cigarette advertising bans, bans on workplace smoking, bans on smoking in restaurants and bars, and tobacco taxes (total revenue). Contains information about these laws for each year between 1980 and 2010, inclusive. In addition, it contains variables that describe the social, economic, demographic, health care, political, and crime chacteristics of the states in each of these years.
- State Vaccination Requirements and Exemption Law Database, 2011
Database of state laws pertaining to immunization requirements and exemptions.
- Stigma and Tuberculosis in Haitian Populations: A cross-national study of the impact of stigma on patient experience and clinical outcomes in Haiti and the United States, 2003-2008
Investigated the social dynamics of stigma in relation to tuberculosis (TB) in 2 populations, Haitians in the United States and in Haiti. The theoretical framework of the study was cultural epidemiology, which combines quantitative and qualitative measures to study experience, meaning, and behavior in subpopulations of interest. The study design enabled important comparisons across national settings that highlight the differential effects of political-economic context, differences in stigma dynamics for active disease compared to latent infection, and measured the impact of stigma on adherence to preventive therapy. Study components included an ethnography of TB stigma, a cross-cultural epidemiologic study, and a community trial of adherence to preventive therapy. Study sites were South Florida, United States, and Leogane, Haiti. The study aimed to investigate: (1) differences in the degree and components of stigma across different sociocultural settings and comparison groups (community members, health care providers, patients); (2) differential stigma effects in a public vs. private, culturally competent clinic; (3) correlates of TB-related stigma; and (4) the influence of perceived stigma on adherence to latent tuberculosis therapy. Data were collected between 2003-2006 in three phases: Phase I Ethnographic Research; Phase II Cultural Epidemiologic Study; and Phase III Adherence Study. A total of 768 persons were interviewed, including 408 women (53 percent) and 360 men (47 percent). All study aims were completed with the exception of No. 2, which was not possible due to the closure of the Haitian Community Clinic in South Florida. The study consists of data from community, patient, and provider interviews. Demographic variables include sex, age, primary language, education level, employment status, marital status, and religion.
- Study of Women's Health Across the Nation (SWAN) (1995+)
Multi-site longitudinal, epidemiologic study designed to examine the health of women during their middle years. Examines the physical, biological, psychological, and social changes during this transitional period. The goal is to help learn how mid-life experiences affect health and quality of life during aging. Includes questions about doctor visits, medical conditions, medications, treatments, medical procedures, relationships, smoking, and menopause related information such as age at pre-, peri- and post-menopause, self-attitudes, feelings, and common physical problems associated with menopause. Also included are background characteristics (age, race, occupation, education, marital status, and family size). The research centers are located in the following communities: Ypsilanti and Inkster, MI; Boston, MA; Chicago, IL; Alameda and Contra Costa County, CA; Los Angeles, CA; Hackensack, NJ; and Pittsburgh, PA.
- Surveillance Epidemiology and End Results Program (SEER) 1973+
Provides cancer data.
- Survey of Health Services Utilization and Expenditures, 1963
Concerned with trends in the use of health services and the expenditures made for these services. One or more members of selected families provided information regarding use of health services, the cost of these services, and how this cost was met for the calendar year 1963. Information on health attitudes and beliefs was also collected for the head of each household (or spouse). In addition, data were gathered from hospitals, employers, and insuring organizations concerning hospitalizations and insurance coverage reported in the family interviews. These data were then combined with family reports to achieve the best possible estimates for hospitalization and health insurance coverage variables. Data are supplied at the individual level and are broken down by age, income, race and residence.
- Time, Love, and Cash in Couples With Children Study (TLC3) [United States], 2000-2005
Consists of complete transcriptions of 4 waves of individual and couple interviews with parents who experienced a birth in 2000, with over-sampling for nonmarital births. Both mothers and fathers participated in semi-structured, in-depth interviews both individually and as a couple in each of the four waves.
Sample Size: 756 interviews. Sample is embedded in the Fragile Families and Child Wellbeing Study. Participants were chosen based on a stratified, random sampling scheme from Chicago, New York, and Milwaukee. Nonmarital births were oversampled.
- UNICEF Global Database on Breastfeeding Indicators
- UNICEF: Monitoring the Situation of Children and Women
Contains the full range of statistical information made available by UNICEF. Includes the official global statistical databases published in The State of the World's Children. Indicators on child survival and health, child nutrition, maternal health, water and sanitation, education, child protection, HIV/AIDS, immunization, and Millennium Development Goals.
- United States National Health Measurement Study, 2005-2006
Surveyed older adults with a suite of health-related quality of life (HRQoL) indices to allow comparison and cross-calibration of these instruments. Oversampled African Americans and older individuals to allow subgroup analyses. Several preference-weighted indices measuring self-reported generic HRQoL are used widely in population surveys and clinical studies in the United States and around the world. These indices are used to evaluate individual and population health. Each index uses a multidimensional representation of health, but each index covers the dimensions of health (e.g., physical function, mental function, social function, pain, other symptoms, etc.) differently, and uses questionnaires with different psychometric properties. Each index is scored so that perfect health is represented as 1.0 and dead is represented as 0.0, but they are known to have different scaling properties. Respondents indicated whether they had been diagnosed with coronary heart disease, stroke, diabetes, arthritis, eye disease, sleep disorder, chronic respiratory disease, clinical depression or anxiety disorder, gastrointestinal ulcer, thyroid disorder, and/or severe chronic back pain. Census tract is not identified, however race composition, education levels, economic factors, and urbanicity of each respondent's census tract of residence are included as contextual variables. Demographic, socioeconomic, and additional health data were elicited. Respondents are characterized by census region of residence, age, gender, marital status, race, ethnicity, education, household income and assets, health insurance, weight, height, smoking status, psychological well-being scales, and everyday and lifetime discrimination items.
Sample Size: Noninstitutionalized adults aged 35-89 residing in the continental United States in households with landline telephones. 3,844 adults (1,641 males and 2,203 females, 1,086 African Americans).
- USDA Nationwide Food Surveys, 1935-1998
Data is also stored locally for 1985-1986 (Continuing survey of food intakes by individuals 1985-1986 : women 19-50 years of age and their children 1-5 years of age, 6 waves, 1985) and 1994-1996, 1998 (Continuing survey of food intakes by individuals 1994-1996, 1998). Continued by What We Eat In America, NHANES.
- Veterans Health Administration. Hospital Report Card (2008+)
Facility-level reports of quality and safety data, reporting on care provided in inpatient and outpatient settings, quality of care within specific patient populations, and patient satisfaction.
- Welfare, Children, and Families: A Three-City Study (1999+)
Intensive study in Boston, Chicago, and San Antonio to assess the well-being of low-income children and families in the post-welfare reform era. Investigates the strategies families have used to respond to reform, in terms of employment, schooling or other forms of training, residential mobility, and fertility. Central to this project is a focus on how these strategies affect children's lives, with an emphasis on their health and development as well as their need for, and use of, social services.
- Wisconsin Hospital Association Emergency Department Data 2002-2008
Data for emergency rooms in and around Green Bay, WI for the following conditions: Upper Respiratory Infection, Sinusitis, Pharyngitis, Bronchitis; Otitis Externa and Otitis Media; Conjunctivitis; and UTI. Data is restricted. DSS Study # 24.
- Wisconsin Longitudinal Study (WLS) (1957+)
Provides an opportunity to study the life course, intergenerational transfers and relationships, family functioning, physical and mental health and well-being, and morbidity and mortality from late adolescence through middle age. WLS data also cover social background, youthful aspirations, schooling, military service, labor market experiences, family characteristics and events, social participation, psychological characteristics, and retirement. Survey data were collected from the original respondents or their parents in 1957, 1964, 1975, 1992, 2004, and 2011; from a selected sibling in 1977, 1994, 2005, and 2011; from the spouse of the original respondent in 2004; from the spouse of the selected sibling in 2006; and from widow(er)s of the graduates and siblings in 2006. Data are currently available from all collection rounds except the widows. These will be available in the future.
Sample Size: Random sample of 10,317 men and women who graduated from Wisconsin high schools in 1957.
- Work, Family, and Health Study (WFHS)
Transdisciplinary research effort designed to enhance understanding of the impact of workplace practices and policies on work, family life, and health outcomes. All employee and manager participants were assessed at baseline and at 6-, 12-, and 18-months post baseline. Opinions were elicited from employers and managers regarding the amount of hours they work, balance between work and family, opportunities to work from home, the ability to take vacation and time off when desired, and decision-making authority at work. Responses were also gathered on issues such as talking with a manager about conflicts outside of work, willingness to help other coworkers when they have been absent, workplace safety, and obligations to come into work when sick. Information was also collected on the likelihood of respondents quitting the company, whether respondents were looking for work elsewhere, job performance ratings of self and others, opinions about supervisors, and a series of questions relating to psychological distress and well-being. Data collected 2009-2012.
- World Health Survey (WHS) (2002-2004)
Monitors critical health outcomes and health systems through the fielding of a valid, reliable, and comparable household survey instrument. The WHS was implemented between 2002 and 2004 in countries selected to represent all regions of the world. Study samples were nationally representative and probabilistically selected. Sampling weights were generated and adjusted for the population distribution with final post-stratification corrections for non-response. The total sample size, using nationally representative samples, includes over 300,000 individuals aged 18+ years. For China, Ghana, India, Mexico, Russia and South Africa, WHS also serves as SAGE Wave 0. Household data includes a household roster, health insurance coverage, health expenditures, and indicators of permanent income or wealth. Individual level data include sociodemographic information, health state descriptions, health state valuation, risk factors, chronic conditions, mortality, health care utilization, health systems responsiveness and social capital. Registration is required. Each nation was surveyed once during this period. ICPSR has Wave 0 only. Countries covered: Argentina, Australia, Austria, Bahrain. Bangladesh, Belgium, Bosnia and Herzegovina, Brazil,
Bulgaria, Burkina Faso, Canada, Chad, Chile, China, Colombia, Comoros, Congo Republic, Costa Rica, Cote d'Ivoire, Croatia, Cyprus, Czech Republic, Denmark, Dominican Republic,
Ecuador, Egypt, Estonia, Ethiopia, Finland, France, Georgia, Germany, Ghana, Greece, Guatemala, Hungary, Iceland, India, Indonesia, Iran, Ireland, Israel, Italy, Jordan, Kazakhstan, Kenya, Kyrgyz Republic. Lao PDR, Latvia, Lebanon, Lithuania, Luxembourg,
Malawi, Malaysia, Mali, Malta, Mauritania, Mauritius, Mexico, Morocco, Myanmar, Namibia,
Nepal, Netherlands, New Zealand, Nigeria, Norway, Oman, Pakistan, Paraguay, Philippines,
Poland, Portugal, Romania, Russian Federation, Senegal, Singapore, Slovak Republic,
Slovenia, South Africa, South Korea, Spain, Sri Lanka, Swaziland, Sweden, Switzerland,
Syria, Thailand, Trinidad & Tobago, Tunisia, Turkey, Uganda, Ukraine, United Arab Emirates,
United Kingdom, United States, Uruguay, Venezuela, Vietnam, Zambia, and Zimbabwe.
- Youth Risk Behavior Surveillance System 1991+
Monitors health risk behaviors that contribute markedly to the leading causes of death, disability, and social problems among youth and adults in the United States. These behaviors, often established during childhood and early adolescence, include tobacco use,
unhealthy dietary behaviors, inadequate physical activity, alcohol and other drug use. Sexual behaviors that contribute to unintended pregnancy and sexually transmitted diseases, including HIV infection. Behaviors that contribute to unintentional injuries and violence.
This page last updated: October 21, 2009